摘要：

目的 了解腦卒中患者的夫妻疾病溝通體驗。方法 采用描述性現(xiàn)象學(xué)研究，使用目的抽樣法，選取2022年8月—2023年3月在河南省某三級甲等綜合醫(yī)院神經(jīng)內(nèi)科住院治療或復(fù)診的19對腦卒中患者及其配偶進行半結(jié)構(gòu)式訪談，采用Colaizzi 7步法分析資料。結(jié)果 共提煉出2個主題和8個亞主題：建設(shè)性疾病溝通，包括開放溝通治療信息、及時溝通癥狀變化、積極溝通二級預(yù)防和主動開導(dǎo)負性情緒；消極疾病溝通，包括回避溝通、溝通沖突、無效溝通和溝通隱瞞。結(jié)論 腦卒中患者夫妻既存在建設(shè)性疾病溝通也存在消極疾病溝通體驗。醫(yī)護人員應(yīng)開展針對性的干預(yù)，改善腦卒中患者夫妻疾病溝通方式，提升其共同決策能力，減少其負性情緒。

關(guān)鍵詞: 腦卒中, 配偶, 夫妻, 疾病溝通, 質(zhì)性研究, 護理

Abstract:

Objective To gain insight into the experience of disease communication among couples with stroke. Methods A descriptive phenomenological approach was conducted and a purposive sampling method was used to select 19 couples with stroke from August 2022 to March 2023 in the Department of Neurology of a tertiary hospital in Henan Province for semi-structured interviews. Data were analyzed by the Colaizzi method. Results A total of 2 themes and 8 sub-themes were extracted. Constructive disease communication included open communication of treatment information，timely communication of changes in symptoms，active communication of secondary prevention，and proactive communication of negative emotions. Negative disease communication included avoidance of communication，communication conflict，ineffective communication，and communication concealment. Conclusion Couples with stroke experienced both constructive and negative disease communication. Healthcare professionals should develop targeted interventions to improve disease communication，enhance the ability of couples to make decisions together，and reduce their negative emotions.

Key words: Stroke, Spouse, Couple, Disease Communication, Qualitative Research, Nursing Care

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